For as long as I can remember
I have been fascinated by people
people. Growing up in a small Wisconsin town, I discovered early that I loved helping others feel seen, understood and connected. In high school I tutored newly immigrated Hmong students in reading and communication. What began as a way to help someone else, quietly became the path that shaped my future.
That experience led me to become a speech-language pathologist, but it also planted a question that would guide my career...
Who is the person beyond the diagnosis and and what changes when we focus on what's possible?
For more than three decades that question has shaped my work as a clinician, educator, consultant and lifelong learner.
While many conversations focus on what's been lost, I was drawn to what remained: the person, the relationships, a life to be lived.
What we choose to notice, changes what is
Like so many families, we didn't know what was ahead.
We only knew that someone we loved was beginning to change - and that continued to love her just as deeply.
At first the changes were subtle. She hesitated more often. Everyday tasks took longer. We tried to prepare dad for what might come, but some realities are simply too painful to imagine until you are living them.
Everything changed when dementia quietly became part of our life story.
As time passed and the years unfolded, I knew what dementia would take, but I didn't know all that it would reveal.
Beneath the diagnosis, was the woman who loved babies, smiled when music played, and found comfort during moments of connection.
So much changed, but not everything. Love was still there and connection was still possible.
Watching each person in our family walk this journey - and watching Dad carry the weight of caregiving - taught me something no textbook ever could.
Observing matters. Preparation matters. Control doesn't disappear - we simply learn to hold it differently, one moment at a time.
What we choose to notice changes how we experience the journey.